Panel: Assessing Barriers to Treatment Panel | Rare Disease Day: 40 Years of the Orphan Drug Act

Bob Cusack (Editor in Chief, The Hill) discusses 40 years of the Orphan Drug Act with experts Dr. Thomas Crawford, MD (Co-Director, Muscular Dystrophy Association Clinic, Johns Hopkins Medicine; Pediatric Neurologist, Johns Hopkins Children’s Center), Donna R. Cryer, JD (Founder & CEO, Global Liver Institute), Heidi Ross (VP, Policy & Regulatory Affairs, National Organization for Rare Disorders (NORD)), and Frank Sasinowski, JD (Director, Hyman, Phelps, and McNamara).

Rare Disease Day: A Look at 40 Years of the Orphan Drug Act, streamed on February 28, 2023. Sponsored by Alexion Pharmaceuticals.
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