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Living with Pompe disease – Juan



Published
Hear Juan’s account of his Pompe disease diagnostic journey, which included living with a misdiagnosis for approximately eighteen years until he finally got the correct diagnosis at the age of 41. In addition to sharing information about the signs and symptoms he's experienced over the years, he also speaks about the support he has received from family and the importance of a positive life approach.

MAT-US-2210135-v1.0-12/2022
Category
Health
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