Innovation in rare diseases: How can Europe be a global leader? | Euronews Debates

Mark the date! On February, 15th at 3.00 PM CET, Euronews will gather a panel of experts, industry leaders and key players in Brussels to address the issue of how rare disease provision can be advanced in the EU.

In the European Union, a disease is considered rare if it affects fewer than five people in 10,000.

This might sound small but in practice, six to eight per cent of the bloc's population is affected by a distinct rare condition like this, which translates to between 27 and 36 million people.

Guests joining the discussion will include Alessandra Moretti, Member of the European Parliament,
Yann Le Cam, CEO at EURORDIS, David Nestor, Head of Neuromuscular Diseases, Europe, Canada & Partner Markets, Biogen and Philippe Berta, Member of the National Assembly of France.

Debate host and Euronews science journalist Jeremy Wilks will accompany the panel as they consider rare diseases and the battle for progress, tackling questions like how the private and public sector can work better together and what the future formula for better healthcare should look like.

You can register to watch our debate here: https://bit.ly/3IUM4Bm

Stay tuned!

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