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Gudjon's story: living with amyotrophic lateral sclerosis (ALS), or motor neuron disease (MND)



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Gudjon, from Iceland, is living with amyotrophic lateral sclerosis (ALS), or motor neuron disease (MND). He is chair of MND Iceland and a founding member of the European Organization for Professionals and Patients with ALS (EUpALS). ALS/MND weakens the muscles needed for voluntary movements like chewing, walking and talking. Its rapid progression means the level of support a person needs is constantly changing. Here, Gudjon shares his thoughts on considering genetic counselling and testing for people with ALS/MND. In some cases, genetic tests can identify a genetic mutation associated with the condition.

Learn more about ALS/MND at https://www.als-mnd.org/
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Health
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