Ambiguous Loss and Grief | Circle of Care Webinar Series

Circle of Care welcomed guest speaker Andrea Ubell from the Alzheimer's Society of York Region to speak about the important topic of ambiguous loss and grief.

Time Stamps & Links
00:01:51 - It's the longest goodbye - article: https://alzheimer.ca/en/whats-happening/news/its-the-longest-goodbye
00:05:10 - What is Alzheimer's disease?
00:07:12 - The progression of disease
00:17:53 - Teaching table on the course of Alzheimer's disease: http://www.stacommunications.com/customcomm/Back-issue_pages/AD_Review/adPDFs/june2002/10.pdf
00:20:35 - Dementia as a terminal illness, certainties of the disease, resource: https://brainxchange.ca/
00:28:48 - Ambiguous dying syndrome
00:31:22 - Anticipatory grief & disenfranchised grief, and ambiguous loss
00:36:09 - Is dying with dementia different?
00:40:29 - Impact of dementia on caregivers
00:44:17 - What can be done?
00:52:26 - Tips for resilience
00:56:34 - Ambiguous Loss and Grief in Dementia: https://alzheimer.ca/sites/default/files/documents/ambiguous-loss-and-grief_for-individuals-and-families.pdf
00:57:04 - Supporting Clients Through Ambiguous Loss and Grief: https://alzheimer.ca/sites/default/files/documents/Ambiguous%20Loss%20Health%20Provider%20En-20-FINAL-MD.pdf
00:57:58 - Question & Answer Session
00:58:09 - I'm concerned about my family history of Alzheimer's. How is Alzheimer's diagnosed?
01:00:25 - What can we do to protect ourselves?
01:00:59 - Are there treatments for Alzheimer's?
01:01:31 - What's your advice for when a caregiver feels they have an exclusive responsibility to care for their loved one without accepting help?
01:03:10 - My mom is facing challenges with swallowing liquids, and taking medications. What can I do?
01:04:51 - What can I do in a situation where my mother doesn't recognize me? She no longer remembers that I'm her daughter.
Resources: Glenn Campbell's story - https://www.nbcnews.com/nightly-news/glen-campbells-battle-alzheimers-last-recorded-song-n220031
Complaints of a Dutiful Daughter - https://www.kanopy.com/product/complaints-dutiful-daughter-1 (can be watched through with a Toronto Public Library log-in)
01:07:09 - What activities can I do with my mother, who is in the late stages of the disease?