Alzheimer Europe Conference 2022 #32AEC, P3Applying an intersectional lens in dementia care research

Chapters

00:00 Introductory comments by Chairperson: Martina Roes (Netherlands)

02:18 P03.01 Martina Roes (Netherlands) and InterDem Taskforce: Intersectionality and dementia care research: preliminary results from a scoping review

21:00 P03.02 Huerrem Tecan-Guentekin (Germany): intersectional analysis of racial discrimination experiences of Turkish dementia caregivers in Germany
Background: Racism in health care and nursing care is rarely clearly identified as such in Germany and internationally. Barriers to access are more often addressed, but people's experiences of discrimination rarely receive attention. This qualitative secondary data analysis focuses on racially discriminatory experiences among Turkish family caregivers of people with dementia in Germany.
Methods: 10 expert interviews and 11 problem-centred interviews with family caregivers of people with dementia with Turkish origin in Germany were conducted in the project “Strengthening self-management competencies of Turkish family caregivers of people with dementia”, Bielefeld University (Tezcan-Güntekin & Razum 2018). The secondary data analysis was conducted with structuring qualitative content analysis (Mayring 2015) and documentary data analysis (Bohnsack 2000).
Results: The analysis has shown that family members experience racial discrimination when receiving advice on care support, when receiving medical outpatient and inpatient care and, above all, because of their decision to receive care at home, even in the event of a serious illness. Past experiences of racial discrimination sometimes lead to avoidance of care options because of fears that they do not address individual needs.

42:13 P03.03 Carolien Smits (Netherlands): sharing of family care in family carers with a migration background, applying an intersectionality lens in research and communication tool development

01:02:22 Questions and answers
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