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Addressing Health Equity in Detecting and Treating Rare Diseases



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Roughly 30 million Americans have a rare disease and face tremendous obstacles when seeking effective health care. From an average of five years to reach accurate diagnosis to limited treatment options, these challenges can be compounded for rare disease patients of color due to the ongoing lack of representation in clinical trials and structural health disparities in access to quality and affordable care. Hear from healthcare leaders as they discuss recent innovations in detecting and treating rare diseases, and how the sector can work to reduce racial disparities in the rare disease community.

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Health
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