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Abigail's ARFID (Avoidant/restrictive food intake disorder) Story - Nemours Children's Hospital, DE



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During COVID, a young girl named Abigail began having symptoms of ARFID -Avoidant/restrictive food intake disorder (ARFID) is an eating disorder. Children with ARFID are extremely picky eaters and have little interest in eating food. They eat a limited variety of preferred foods, which can lead to poor growth and poor nutrition.

During a well care visit, the family's primary care doctor noted Abigail's lack of weight change from the year before as well as other concerning symptoms and recommended hospitalization. A feeding tube helped stabilize Abigail's weight and nutrition, but outpatient counseling was recommended.
Fortunately, the family was able to connect with an eating disorder specialist at Nemours Children's Hospital, Delaware, Dr. Chrissy Cammarata who worked with Abigail and her family over the course of several months to address to address her eating disorder and today Abigail is doing well.

ARFID usually starts at younger ages than other eating disorders. Unlike anorexia and bulimia, which are more common in girls, boys are more likely to have ARFID.
What Are the Signs of ARFID?
Picky eating and a general lack of interest in eating are the main features of ARFID. People with ARFID may not feel hungry or are turned off by the smell, taste, texture, or color of food. Some kids with ARFID are afraid of pain, choking, or vomiting when they eat.
What Problems Can Happen with ARFID?
ARFID may lead to problems from poor nutrition. Kids with the disorder may:
not get enough vitamins, minerals, and protein
need tube feeding and nutrition supplements
grow poorly
have delayed puberty
become overweight or obese
The lack of nutrition associated with ARFID can cause:
dizziness and fainting due to low blood pressure
a slow pulse
dehydration
weakened bones (osteoporosis) and muscles
stopped menstrual periods (amenorrhea)
What Causes ARFID?
The exact cause of ARFID is not known. Many experts believe that a combination of psychological, genetic, and triggering events (such as choking) can lead to the condition. Some kids with ARFID have gastroesophageal reflux disease (GERD) or other medical conditions that can lead to feeding problems.
How Is ARFID Treated?
ARFID is best treated by a team that includes a doctor, dietitian, and therapist who specialize in eating disorders. Treatment may include nutrition counseling, medical care, and feeding therapy. If choking is a concern, a speech-language pathologist can do a swallowing and feeding evaluation.

The main goals of treatment are to:
Achieve and maintain a healthy weight and healthy eating patterns.
Increase the variety of foods eaten.
Learn ways to eat without fear of pain or choking.
Doctors might prescribe medicines to increase appetite or treat anxiety. If anxiety is a concern, the therapist will teach children and families ways to handle worries around food.

Most children with ARFID can be treated at home, but some will need to go to a more intensive hospital-based program. Someone with severe weight loss and malnutrition or serious health issues will need treatment in a hospital. Some children with ARFID will need tube feeding or nutrition formulas to get the calories and vitamins they need.

ARFID can be hard to overcome, but learning about healthy eating and addressing fears helps many kids and teens feel better and do well. When the whole family works together to change mealtime behaviors, a child is likely to have continued success.

If you are concerned your child may have an eating disorder, call your doctor for advice. The doctor can recommend nutrition and mental health professionals who have experience treating eating disorders in kids and teens. You also can find support and more information online atThe National Eating Disorders Association (NEDA).

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